Caring in America
With Podcast Host: Richard Wexler
Episode 126
What one family’s journey caring for a 99-year-old grandmother teaches us about resilience, family, and the complexities of aging.
Caregiving rarely follows a straight path. It can begin with something as simple as managing medications or scheduling doctor’s appointments from afar, then quickly evolve into a full-time responsibility that touches nearly every aspect of family life.
In Episode 126 of Caring in America, Richard Wexler sits down with Kira Levin to discuss her family’s remarkable caregiving journey with her grandmother, a woman who, at 99 years old, continues to walk, stay connected to the world, and find joy in the everyday moments of life.
Her story is one of resilience, but it is also a powerful reminder that aging is complex, medical challenges can be unpredictable, and successful caregiving takes far more than good intentions.

When Caregiving Becomes a Family Effort
Kira’s role as a caregiver began more than a decade ago, coordinating her grandmother’s medications and doctor’s appointments across different cities, states, and even countries. At the time, she was managing a small part of what caregiving would eventually become.
Everything changed when her grandmother, who had been relatively healthy for years, experienced a series of hospitalizations. Over six weeks, she endured three separate hospital stays, including time in an intermediate care unit. The family faced misdiagnoses, conflicting medical information, medication concerns, and difficult decisions about what would happen after each discharge.
Kira and her family quickly learned that navigating the healthcare system requires persistence, communication, and constant coordination.
Family members traveled to help, took shifts at the hospital, documented conversations, and shared updates so everyone remained informed. With two of her grandmother’s children being doctors, the family also had valuable medical knowledge to draw upon.
Even with those advantages, the experience was exhausting and overwhelming.
Their story illustrates a reality many families face: when a loved one experiences a medical crisis, caregiving responsibilities can expand almost overnight, leaving families to coordinate care while trying to understand what comes next.
Recovery Is About More Than the Injury
Several years earlier, at age 95, Kira’s grandmother broke her left femur after tripping on the carpet in her apartment. During the early days of the pandemic, the family was advised to bring her home rather than send her to a rehabilitation facility.
Her father helped her practice walking frequently, even if it meant taking just one step at a time. With persistence and support, she recovered remarkably well. Within a couple of months, she was walking a mile again.
But her later hospitalizations brought new challenges. Following another series of medical events, she broke her right femur. This time, recovery was significantly slower. She was older, weaker, and still dealing with the effects of her previous hospital stays.
Kira describes the difference as night and day.
Yet her grandmother continued working toward recovery, supported by a family that refused to give up on her progress. Eventually, she regained much of her mobility and returned to walking regularly.
Today, she still walks about half a mile each day and can manage a mile-long trip when the weather cooperates.
Her experience underscores the importance of looking beyond an individual diagnosis or injury. Recovery can be influenced by age, previous hospitalizations, medication effects, mental clarity, physical strength, and the support available at home.
It also reminds us that every person's recovery journey is different. What works in one situation may not work in another, making individualized care and professional guidance essential.
The Hidden Complexities of Medical Care
One of the most challenging parts of Kira’s story involves her grandmother’s trigeminal neuralgia, a neurological condition that causes severe facial pain.
Managing this condition required trying different medications to control the pain. Over time, Kira’s family came to believe that medication effects may have contributed to some of her grandmother’s falls and subsequent medical complications.
The family also encountered situations in which prescriptions, medication interactions, and recommendations required additional questions and follow-up.
These experiences highlight how complicated medication management can become, particularly for older adults living with multiple health concerns. A treatment intended to relieve one problem may introduce other risks, and families may find themselves communicating among multiple doctors, pharmacies, and care providers to understand the full picture.
Kira described the hours spent reviewing medications, coordinating appointments, dealing with insurance and Medicare, organizing long-term care policies, and following up when something did not seem right.
This is the administrative side of caregiving that often goes unseen.
Caregiving is not just providing hands-on assistance. It is also the work of connecting the dots between professionals, asking questions, tracking information, and advocating for someone who may not be able to manage every detail independently.
The Emotional and Personal Cost of Caregiving
Throughout the conversation, Kira is candid about the impact caregiving has had on her family.
When a crisis occurs, everyone steps in. But the ongoing work of caregiving means making compromises in personal lives, careers, schedules, and other responsibilities.
Even when family members share the workload, the demands can be significant. There are hospital shifts, laundry, appointments, medication questions, insurance paperwork, and the constant effort of determining what needs to happen next.
Kira recognizes how fortunate her family is to have multiple people involved. Rather than placing the entire responsibility on one person, they have built a system of shared support.
That distinction matters.
Family caregiving can become overwhelming when one individual is expected to manage every decision and responsibility. Sharing information, dividing tasks, and communicating regularly can help families work together more effectively, even though it does not eliminate the emotional or physical demands.
Her story also reinforces the importance of acknowledging caregivers themselves. Supporting an aging loved one is an act of love, but it can also require substantial sacrifices. Caregivers need support, information, and opportunities to recognize their own needs alongside those of the person receiving care.
Creating a Home That Supports Aging
After her grandmother’s hospitalizations, the family made a significant decision: instead of returning her to her apartment in an independent living community that had transitioned to assisted living, they formally moved her into her parents’ home.
They brought her furniture and personal belongings, making the house her home. The family arranged for nighttime aides and initially used additional support after hospital discharges.
This decision allowed family members to be more involved in her day-to-day care while providing a more coordinated environment for her recovery.
It also reflects a broader lesson about aging: where and how someone lives can have a profound impact on their care experience.
A home may need modifications, additional assistance, new routines, or professional support as needs change. Families may also need to reconsider living arrangements after a fall, hospitalization, or change in mobility.
These decisions are rarely simple. They involve safety, independence, finances, family relationships, and the wishes of the older adult.
Planning ahead can help families explore these possibilities before a crisis forces them to make decisions under pressure.
Aging Is About More Than Physical Health
Perhaps the most inspiring part of Kira’s story is how her grandmother continues to live her life.
At 99, she remains interested in current events and asks her family to read the news to her each day. Hallmark movies have become a nightly tradition. She continues to use her knitting skills, tying off baby blankets that Kira makes for friends or donations and offering plenty of feedback on her technique.
She also remains deeply interested in other people. Rather than focusing exclusively on her own challenges, she checks in on family members and friends, asking about their health and their lives.
Her family sees this as an extension of the strong-willed, independent person she has always been.
These details remind us that supporting older adults is not simply about managing medications, preventing falls, or coordinating appointments. It is also about preserving identity, relationships, interests, and purpose.
Aging well can mean continuing to participate in meaningful routines, maintaining connections, and finding ways to contribute, even when physical abilities change.
For caregivers, understanding what matters most to an older adult can help shape decisions around care in ways that support both safety and quality of life.
The Power of Planning and Support
Kira’s family has demonstrated remarkable dedication, but their experience also reveals how much knowledge and coordination caregiving can require.
They have navigated multiple hospitalizations, medication concerns, rehabilitation, changes in living arrangements, insurance administration, and the challenge of balancing family life with caregiving responsibilities.
No single person could reasonably be expected to know everything or manage every detail alone.
That is why conversations about aging and care planning need to happen before a crisis whenever possible. Families benefit from understanding the potential challenges, identifying available resources, discussing living arrangements, and learning which professionals can help with different aspects of the journey.
Caregiving often brings together many different areas of expertise. Medical providers, financial professionals, care managers, insurance specialists, home modification experts, and other professionals may each play a role in helping families navigate the complexities of aging.
When those resources are understood and coordinated, families have a better opportunity to make informed decisions and focus on what matters most: the well-being of the person they love.
A Century of Life-and a Reminder for All of Us
As the episode concludes, Kira shares that her grandmother is approaching her 100th birthday on November 14. Born in 1926, she has lived through a century of change and carries memories of childhood, raising a family, working, and building a life.
Despite the medical challenges she has faced, she remains engaged, persistent, and connected to the people around her.
Her journey is a testament to her determination and to the family that has stood beside her.
But it is also a reminder that longevity brings questions families cannot always anticipate. A fall, a hospitalization, or a medication complication can change daily life in an instant. The work that follows often extends far beyond the hospital room.
The more we understand the complexities of aging, the better prepared we can be to support older adults and the people who care for them.
Because caregiving is not just about responding to a crisis. It is about helping people live with dignity, independence, connection, and purpose at every stage of life.
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Our country is entering a new chapter, one we have never seen before… over 100 million people are 50 years of age or older, and the need for care is going to be more and more prevalent. We are dreaming of a nation where aging and care are understood and become part of our normal conversations with family.
To make this a reality, we need your help!